INTERVIEW WITH KNOWLEDGE IS POWER

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  • Knuckle pain in fingers
  • Pain in joints
  • Weight gain
  • Shortness of breath / difficulty breathing
  • Muscle weakness
  • Skin discoloration
  • Heart flutters / abnormal heart rhythm
  • Loss of menstrual cycle / period
  • Diarrhea
  • Bloat
  • Fatigue / feeling tired Insomnia
  • Abnormal liver enzyme levels
  • Liver problems
  • Other symptoms – struggled with weight gain since menopause, despite eating an unprocessed diet and never being overweight for the first 50 years of life.

So much makes sense now. I have Swedish and northern European heritage

All symptoms ongoing

Shortness of breath: no matter how much exercise or healthy eating I did, was a problem as I got older (35 onwards)

A family member was diagnosed and we were advised to have the test

One copy

No alcohol, no supplements (vitamins etc), vegetarian diet, walking, yoga, meditation, no caffeine (to improve poor sleep patterns)

They seem to have no knowledge or understanding of the condition. I am finally understanding what and why I have have struggled so badly with my health since menopause and cessation of periods. This condition has had a massive impact on my health and life.

I was given no advice initially really, other than monitor iron levels. I have just have blood tests with iron levels up and liver enzymes. Now researching more and making adjustments. Finally things make sense and I understand how my body works.

Gain as much knowledge as possible and move to an unprocessed, plant based lifestyle. I may down the track bring in fish again occasionally.

I am blood type A, which leans to a vegetarian diet. I wonder if there is a link between blood type and this genetic condition

I live in southern Australia and went for post graduate study back to university 3 years ago for post-graduate study to find answers for my health and change paths ways.

I have just completed my master of Human Nutrition and Hemochromatosis was not mentioned in this very comprehensive course that was also being studied by many doctors, dentists etc.

There is still a long way to go.