grow your hair back! part 2 of 4

Goat in sunshine

While some causes of hair loss are inevitable – like genetics and aging – hair that’s fallen out as a consequence of iron overload doesn’t have to be permanent! Now that you’re getting your iron levels under control, your organs, hormones, and body functions are recovering – and you can grow your hair back. There are four main approaches to cultivating a big head of hair. If you’ve lost your hair, you’ll want to hit on all 4 of these approaches to see the best effects.

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grow your hair back! part 1 of 4

Horse with long white mane

Among the not so pretty symptoms of hemochromatosis and iron overload, there are a few that are particularly uncomfortable. And unfortunately, they can last a while after your diagnosis and the start of your treatment. One of these symptoms is hair loss, and it can feel embarrassing. That’s why I’ve put together all the info I could find to benefit anyone who’s lost hair to hemochromatosis and is struggling to grow it back.

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4 surprising activities to avoid if you have hemochromatosis

woman holding greens in front of face

If you’re anything like me, you work hard to educate yourself on hemochromatosis and to “stay on top of it”- you get routine phlebotomies and you regularly test your iron levels. Even with treatment and awareness, controlling your iron levels can feel confusing. When I started learning about hemochromatosis, I stumbled across some info that caught me off guard. I discovered four activities I took part in all the time – potentially unhealthy activities for someone with hemochromatosis that I hadn’t been paying attention to when I should have. Here are four activities you should watch out for when you have hereditary hemochromatosis – they might surprise you.

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INTERVIEW WITH SPACEY

Notebook and bouquet

“When the covid-19 lockdown first started in March, one of the early suggestions going around in nutritional circles was to up your intake of vitamin C and Zinc especially the liposomal vitamin C, highly absorbable. So I did that starting in the beginning of April…by the mid to end of April I had become increasingly jaundiced and exhausted all the time and I could not keep food down, so my doctor ran tests and found it.

I was Triple National gold medalist in competitive swimming and I’m looking forward to feeling like being much more active very soon.”

Read more from Spacey and dive into the full story by clicking on the post.

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INTERVIEW WITH ANG

Notebook with pen and coffee

“I have a prior rare blood platelet disorder that had required life sustaining transfusions that combined with other treatments activated the HFE gene mutations. I have no issues yet but iron must be reduced. I was tested as my brother was diagnosed last year. Unfortunately due to the stabilized rare platelet disorder, I am not a candidate for standard phlebotomy treatment and had an adverse reaction to Deferasirox an oral chelator, and now will require subcutaneous Deferoxamine chelation.”

Read more from Ang by clicking on the post.

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INTERVIEW WITH IRON LADY

Notebook and ballpoint pen

Diagnosed with hereditary hemochromatosis around 12 or 13 years old.

“I still get very tired, and I experience a lot of anxiety and heart flutters. My biggest symptom now is hair loss.

I am a 20 year old Auckland girl who loves working, exercising and having a good laugh!”

Read more about Iron Lady’s story by clicking on the post.

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INTERVIEW WITH PAIN REMINDS ME I’M ALIVE

Notebook and black pen

Daily regimen:

4am – drink 32 oz. of water to give liver a cleanse
7am – drink 32 oz. celery juice
10am – fresh fruit smoothie w/ blueberries, mango, banana, a handful of cilantro, and a squeeze of honey.
Lunch – a salad with chicken and falafel
Mid Afternoon – eat a whole apple
Dinner – some healthy homemade chicken soup or chicken stir fry

Get the full interview from Pain Reminds Me I’m Alive by clicking on the post.

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INTERVIEW WITH RUSTY JOINTS JANE

Notebook and colored pencils

Found out she had hemochromatosis because: My grandpa died from it and my dad was diagnosed (after years of searching for answers to his pains).

Phlebotomy treatments: I had phlebotomies every week for 48 weeks. I then took a 6 week break because I was just so weak and ill. I had another 6 treatments. I now have a phlebotomy about once every 6 months.

Read more of Rusty Joints Jane’s story by clicking on the post.

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INTERVIEW WITH KNOWLEDGE IS POWER

Notebook and coffee

Started feeling symptoms at age 51.

Most affected by: shortness of breath

Treatment plan: no alcohol, no supplements, vegetarian diet, walking, yoga, meditation, no caffeine (to improve poor sleep patterns)

“I am finally understanding what and why I have have struggled so badly with my health since menopause and cessation of periods.”

Get to know the full details from Knowledge is Power by clicking on the post.

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