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Does this sound like you?
"For years, Katherine Hough, 27, suffered from a series of mystifying symptoms. Katherine stated, 'I had unexplained stomach pains. Then when I got to university I began to faint frequently, my hair was falling out, I had severe joint pains and was constantly tired.'" -BBC News
Katherine was diagnosed with hereditary hemochromatosis.
Among the not so pretty symptoms of hemochromatosis and iron overload, there are a few that are particularly uncomfortable. And unfortunately, they can last a while after your diagnosis and the start of your treatment.
One of these symptoms is hair loss, and it can feel embarrassing.
Since hair loss is listed as a symptom of hemochromatosis by the Iron Disorders Institute, Haemochromatosis UK, Haemochromatosis Australia, John Hopkins Medicine, and countless other medical institutions, you'd think they'd provide some info on why that is and how to remedy it...
I did some digging and I gathered everything they said regarding the topic of hair loss and hemochromatosis.
You ready to hear it?
Chirp chirp.
Do you hear the sound of crickets?
Not one of these organizations said anything other than listing hair loss as a symptom.
Are you surprised?
Despite the fact that hemochromatosis is the #1 genetic disorder in the 'western world', as of right now, there isn’t relevant information on coping with the symptoms of iron overload like hair loss.
While there's plenty of information on how hair loss can originate from iron deficiency, there's zilch when it comes to good and proper help out there regarding iron overload and hair loss. The Belgravia Centre says:
"...it’s no secret that too much iron can cause hair loss, it’s just that we hear so much about iron deficiencies that the risk of iron overload takes a back seat."
And many medical establishments like Harvard Health suggest taking iron supplements to remedy thinning or balding. Gah! They definitely didn't have people with hemochromatosis in mind when they said that.
That's why I've put together all the info I could find to benefit anyone who's lost hair to hemochromatosis and is struggling to grow it back.
YOU'RE ON PART 1 OF 4
This is part 1, where we'll focus on why iron overload causes hair loss.
In a separate blog post, I'll follow up with part 2 where I'll discuss the hair growth cycle and the different ways to make your hair thicker.
In part 3, I'll talk about the right vitamins, minerals, and nutrients that you need to grow hair and that are safe for the hemochromatosis diet. We'll also discuss which supplements you'll want to avoid!
And lastly, part 4 will be all about topical treatments - like shampoos, serums, and hair oils.
WHY DOES HEMOCHROMATOSIS CAUSE HAIR LOSS?
It's perplexing at first to think how absorbing more iron could lead to hair loss.
After all, iron is one of the most critical minerals for making hair. The body needs iron to make red blood cells. Red blood cells carry oxygen to every organ and body part that needs it, including your hair follicles.
If you're short on iron, you'll be short on red blood cells. If you're short on red blood cells, you'll be short on oxygen.
What happens then? Your body "channels its available supply to your vital organs to keep them alive, rather than to your hair follicles. Without oxygen, your hair follicles cease to function properly, and your hair may fall out," say trichologists (hair and scalp specialists).
When you read that, you may think more iron is always better.
However, too much iron is toxic, writes Claire Collins, Professor in Nutrition and Dietetics at the University of Newcastle. "Excess iron gets deposited in your organs, and this then interferes with normal body functions, as well as the production of hormones that regulate your metabolism and sex drive. Not surprisingly, you don’t feel well."
As anyone with hemochromatosis knows, iron overload is equally as dangerous as iron deficiency.
Iron overload has no boundaries - it damages organs like your liver, pancreas, heart, and intestines. It disrupts body functions like circulation, digestion, and hormone production.
Iron overload, just as much as iron deficiency, can make you lose your hair. In fact, up to 60% of people with hemochromatosis experience hair loss.
Unfortunately, no significant research has been done that clearly shows us why we lose our hair. Hemochromatosis affects multiple body organs and body systems (and the affected organs and systems can differ for each individual) so several factors may be involved. Below I've outlined some known causes of hair loss and demonstrated how hemochromatosis could potentially be the trigger.
OXIDATIVE DAMAGE
Oxidative damage in the skin and scalp advances aging hair and hair loss.
Oxidative damage is one of the most well-documented outcomes of iron overload. Oxidative damage occurs when excess iron reacts with oxygen and other elements in your body. This reaction damages your cells and sets off a chain reaction that harms many more of your cells, bringing on "physical change and deterioration" to your body according to Dr. Eric Lewis.
GUT PROBLEMS
Hemochromatosis is tied to "microbiota dysbiosis" - where the equilibrium of bacteria in the body becomes unbalanced. Excess iron absorbed by the gut allows bad bacteria to proliferate in the GI tract, including the mouth, intestines, and the colon.
A disturbance in your body's bacterial population can also disrupt the state of the hair on your head. Dermatologist Elizabeth Bahar Houshmand, MD says:
"Hair growth does not only take place in the scalp...when the microbiome is in balance, it can also help to decrease the bad bacteria that can lead to hair loss and thinning."
Wilma Bergfeld, MD has the same opinion, saying anything that disrupts your GI tract can also affect hair growth.
FEELING STRESSED OUT
Coping with the health issues arising from iron overload can be a very stressful experience, and many people with hemochromatosis list "anxiety" as one of their symptoms. Interesting, as mental stress can bring about hair loss. Here's how:
- Cortisol. When you're stressed, your adrenal glands produce a hormone called cortisol. Cortisol sends a signal to your hair follicles to transition from a growing phase into a resting phase, and within a few months these hair strands will fall out.
- Hair pulling. Some people unconsciously pick at or pull out their hair when they feel stressed out. This habit can become such an engrained psychological reaction to stress that they pull so much hair out they start to go bald.
BLOOD FLOW
Not getting enough blood flow to the skin may cause hair loss.
Hemochromatosis can interfere with your blood circulation. The National Organization for Rare Disorders says, "Eventually, affected individuals may experience a limited ability to circulate blood to the lungs and the rest of the body..." and Mayo Clinic notes, "excess iron in your heart affects the heart's ability to circulate enough blood for your body's needs."
PITUITARY PROBLEMS
Hormonal imbalances created by problems with the pituitary gland are linked to hair loss.
Hemochromatosis can impair the pituitary gland. According to NORD, in a person with hemochromatosis, "the pituitary may fail to produce sufficient amounts of some or all of the hormones it normally produces" resulting in reduced body hair.
ENDOCRINE SYSTEM DYSFUNCTION
The pituitary gland plays a part in the body's endocrine system, along with the thyroid and pancreas. Both the thyroid and pancreas can also be disabled by iron overload, and endocrine dysfunction can occur in hemochromatosis patients, leading to hair loss, as the endocrine system has several important functions in regulating hair growth.
SEX ORGAN HORMONES
Hemochromatosis can also hinder the functioning of the testes and ovaries. Some men can end up with underactive testes and some women with underactive ovaries. In these cases, "the testes and ovaries fail to produce sufficient sex hormones."
When men's testes fail to produce enough testosterone, men can lose their hair.
"Estrogen has been hypothesized to have a protective role against hair loss," according to researchers, so lower levels of estrogen produced by women's ovaries may also lead to hair loss.
LIVER DISEASE
Liver disease precipitates hair loss.
If you have hemochromatosis, your doctor has probably talked to you about keeping your liver healthy because the liver - whose job is to filter out all of your high iron blood - is the most commonly damaged organ resulting from iron overload. Liver function abnormalities occur in up to 75% of people with hemochromatosis. You're much more likely to develop liver disease than a "normal" person.
From gut problems to stress to liver disease - the above is list of health issues that contribute to hair loss. All of these can result from too much iron. It's no wonder that hair loss is a common symptom of hemochromatosis.
At this point, you're probably thinking you'd like to grow your hair back, not just sit around and read about how you lost it.
If you want to make your hair thicker, head on over to part 2! I'll talk about how the hair cycle works and the different approaches to growing your hair as you recover from iron overload.
And if you've personally experienced hair loss as a result of hemochromatosis, and you have ideas or suggestions for others, I'd love to hear from you! Please comment or send me a message!
Big shoutout to Hannah for requesting this post.
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