INTERVIEW WITH PAIN REMINDS ME I’M ALIVE

INTERVIEW WITH PAIN REMINDS ME I’M ALIVE

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  • Knuckle pain in fingers
  • Pain in joints like hips or knees
  • Arthritis
  • Abdominal pain
  • Weight gain
  • Weight loss
  • Shortness of breath / difficulty breathing
  • Dizziness
  • Muscle weakness
  • Brain fog
  • Anxiety
  • Depression
  • Heart flutters / abnormal heart rhythm
  • Low sex drive
  • Impotence
  • Diarrhea
  • Bloat
  • Hair loss
  • Shaking / trembling
  • Fatigue / feeling tired
  • Insomnia
  • Abnormal liver enzyme levels
  • Liver problems
  • Ringing in Ears
  • Sleep Apnea
  • Foot and leg cramps/spasms
  • Finger cramps
  • Foot and toe pain
  • Numbness on bottom of feet
  • Big stabbing toe pain
  • Migraines
  • Facial Ticks
  • Eye Fluttering

Day and night

It affects me relationship-wise because it’s kept me from having a new relationship.

High AST / ALT / MCV MCH levels

Got a Ferritin test…Results were 3 times higher than normal. I am at 1,100… the high is 380.

Got an HFE test… confirmed I have two sets of the H63D mutation.

The Celtic Curse… both parents are of Irish and Scottish descent

  • Ferritin – 1,100
  • % Saturation – 37
  • Iron Binding Capacity – 292
  • Iron, Total – 108
  • Alpha-Fetoprotein – 6.7 (High)
  • AFP-L3 – 10.2 (High)

2 sets of H63D

Phlebotomies 2x per month

MRI ordered to determine iron storage in liver

Limited alcohol

I changed my diet…Gave up breads, pasta, eggs, dairy, sugar, high fructose corn syrup…

My Dad has heart disease and pre- cursor diabetes, horrible skin rashes and drinks daily.

Mom had diabetes and skin issues as well.

When I told them about the disease, they wanted to know more.

Today, my legs and feet are cramping and I’m unenergetic and tired. But when I lie down, that’s when the cramps are the worst.

I’m on a daily regimen and try to stay consistent. I’m not a doctor…but this is what I am doing to manage the disease:

4am – drink 32 oz. of water to give liver a cleanse

7am – drink 32 oz. celery Juice

10am – fresh fruit smoothie w/ blueberries, mango, banana, a handful of cilantro, and a squeeze of honey.

Lunch – a salad with chicken and falafel

Mid Afternoon – eat a whole apple

Dinner- some healthy homemade chicken soup or chicken stir fry

Born in Laguna Beach, California.

I love music and play piano, guitar and bass, thankfully blessed to be able to play by ear.

I’m in a band that gets together a couple times a month to practice – my favorite time.

I love to cook and now that I’ve changed my diet, I’ve really embraced making healthier choices and discovering alternative foods that will heal instead of create more problems for me.