“I experienced pain in joints for years, but I always thought my days as a runner was the reason. My heart fluttering started 3 months before my diagnosis.

I continue to experience joint pain and I am scheduled for an MRI of my liver and heart so I feel very nervous about those results.”

Read more from Shellshocked in the full post.

“I experienced pain in joints for years, but I always thought my days as a runner was the reason. My heart fluttering started 3 months before my diagnosis.

I continue to experience joint pain and I am scheduled for an MRI of my liver and heart so I feel very nervous about those results.”

Read more from Shellshocked in the full post.

Diagnosed at age 19.

“Always had period problems, but it stopped in August of my freshman year of college. It didn’t return for almost a year later. A couple months before that, my hair started to fall out and get really thin. Doctors misdiagnosed me with endometriosis, PCOS, and iron-deficiency anemia until my blood work came back abnormal.”

Read more from the Princess of Genovia by clicking on the post.

“When the covid-19 lockdown first started in March, one of the early suggestions going around in nutritional circles was to up your intake of vitamin C and Zinc especially the liposomal vitamin C, highly absorbable. So I did that starting in the beginning of April…by the mid to end of April I had become increasingly jaundiced and exhausted all the time and I could not keep food down, so my doctor ran tests and found it.

I was Triple National gold medalist in competitive swimming and I’m looking forward to feeling like being much more active very soon.”

Read more from Spacey and dive into the full story by clicking on the post.

Diagnosed with hereditary hemochromatosis around 12 or 13 years old.

“I still get very tired, and I experience a lot of anxiety and heart flutters. My biggest symptom now is hair loss.

I am a 20 year old Auckland girl who loves working, exercising and having a good laugh!”

Read more about Iron Lady’s story by clicking on the post.

Found out she had hemochromatosis because: My grandpa died from it and my dad was diagnosed (after years of searching for answers to his pains).

Phlebotomy treatments: I had phlebotomies every week for 48 weeks. I then took a 6 week break because I was just so weak and ill. I had another 6 treatments. I now have a phlebotomy about once every 6 months.

Read more of Rusty Joints Jane’s story by clicking on the post.

Started feeling symptoms at age 51.

Most affected by: shortness of breath

Treatment plan: no alcohol, no supplements, vegetarian diet, walking, yoga, meditation, no caffeine (to improve poor sleep patterns)

“I am finally understanding what and why I have have struggled so badly with my health since menopause and cessation of periods.”

Get to know the full details from Knowledge is Power by clicking on the post.