When I found out I had hemochromatosis, it was almost impossible to find similar stories about people I could relate to. Despite the fact that hemochromatosis is the most common genetic disorder in the 'western world,' acknowledging iron overload isn't on the medical agenda when compared to the other end of the spectrum - anemia - which we've all heard of.
That was my big motivator for starting talorae. I knew there were plenty of people out there who felt as isolated as I did in coping with this disorder. We were all experiencing the same embarrassing (and sometimes scary) symptoms, but we didn't have a way to connect with or learn from each other.
INTERVIEW WITH A BLOODLETTER is a platform where people with hemochromatosis can share their experiences with each other - a place to express the very real everyday challenges we all face.
Because the truth is, iron overload impacts more people than you might think...a lot more.
In Ireland and the UK, hereditary hemochromatosis is common enough that it's earned the nickname "the Celtic curse." Research from the UK shows that as many as 1 in 20 may have unhealthy amounts of iron in their liver.
16 million Americans experience some degree of iron overload.
In central and southern Africa, it's estimated to affect up to 10% of the population.
While less understood and seemingly less common, hemochromatosis been documented in Asian populations as well.
It's been called "the most common disease you've never heard of."
With such a prevalent condition that's so little talked about, sharing your experience will help someone else who's wondering "is there anybody else like me?!"
Tell your story for a chance to be published in INTERVIEW WITH A BLOODLETTER by answering the questions below - others can't wait to hear what you have to say!
Want to see your story in INTERVIEW WITH A BLOODLETTER? Share it in the survey form below.
HOW IT WORKS:
The survey is completely anonymous. If you don't feel comfortable answering some of the questions, feel free to leave them blank. There are a few required questions, but most are optional.
That being said, please be as honest and open as possible to help others who may be going through an experience similar to yours. If you want to see your story published on the INTERVIEW WITH A BLOODLETTER page of talorae.com, please divulge more than just one-word answers, so others can learn from your experience. I read every survey submission, and I try to publish the responses that help to provide insight and paint a real-life picture of hemochromatosis that can't be found on WebMD or through a quick Google search.
By submitting your answers, you agree to talorae's Disclaimer, Terms and Conditions, and Privacy Policy. If you have questions or concerns, or if you'd rather email me, feel free to reach out - hello@talorae.com
Want to see what other people shared? Read their stories HERE.
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