INTERVIEW WITH SPACEY

“When the covid-19 lockdown first started in March, one of the early suggestions going around in nutritional circles was to up your intake of vitamin C and Zinc especially the liposomal vitamin C, highly absorbable. So I did that starting in the beginning of April…by the mid to end of April I had become increasingly jaundiced and exhausted all the time and I could not keep food down, so my doctor ran tests and found it.

I was Triple National gold medalist in competitive swimming and I’m looking forward to feeling like being much more active very soon.”

Read more from Spacey and dive into the full story by clicking on the post.

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INTERVIEW WITH ANG

“I have a prior rare blood platelet disorder that had required life sustaining transfusions that combined with other treatments activated the HFE gene mutations. I have no issues yet but iron must be reduced. I was tested as my brother was diagnosed last year. Unfortunately due to the stabilized rare platelet disorder, I am not a candidate for standard phlebotomy treatment and had an adverse reaction to Deferasirox an oral chelator, and now will require subcutaneous Deferoxamine chelation.”

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INTERVIEW WITH IRON LADY

Diagnosed with hereditary hemochromatosis around 12 or 13 years old.

“I still get very tired, and I experience a lot of anxiety and heart flutters. My biggest symptom now is hair loss.

I am a 20 year old Auckland girl who loves working, exercising and having a good laugh!”

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INTERVIEW WITH PAIN REMINDS ME I’M ALIVE

Daily regimen:

4am – drink 32 oz. of water to give liver a cleanse
7am – drink 32 oz. celery juice
10am – fresh fruit smoothie w/ blueberries, mango, banana, a handful of cilantro, and a squeeze of honey.
Lunch – a salad with chicken and falafel
Mid Afternoon – eat a whole apple
Dinner – some healthy homemade chicken soup or chicken stir fry

Get the full interview from Pain Reminds Me I’m Alive by clicking on the post.

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INTERVIEW WITH RUSTY JOINTS JANE

Found out she had hemochromatosis because: My grandpa died from it and my dad was diagnosed (after years of searching for answers to his pains).

Phlebotomy treatments: I had phlebotomies every week for 48 weeks. I then took a 6 week break because I was just so weak and ill. I had another 6 treatments. I now have a phlebotomy about once every 6 months.

Read more of Rusty Joints Jane’s story by clicking on the post.

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INTERVIEW WITH KNOWLEDGE IS POWER

Started feeling symptoms at age 51.

Most affected by: shortness of breath

Treatment plan: no alcohol, no supplements, vegetarian diet, walking, yoga, meditation, no caffeine (to improve poor sleep patterns)

“I am finally understanding what and why I have have struggled so badly with my health since menopause and cessation of periods.”

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INTERVIEW WITH ROSIE

Diagnosed at age 59.

Started feeling symptoms at age 45.

Found out via 23 & Me.

“I can’t wait to be able to play with my grandchildren!”

Learn more about Rosie’s journey with hemochromatosis in the full post.

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