Diagnosed with hereditary hemochromatosis around 12 or 13 years old.
“I still get very tired, and I experience a lot of anxiety and heart flutters. My biggest symptom now is hair loss.
I am a 20 year old Auckland girl who loves working, exercising and having a good laugh!”
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Daily regimen:
4am – drink 32 oz. of water to give liver a cleanse
7am – drink 32 oz. celery juice
10am – fresh fruit smoothie w/ blueberries, mango, banana, a handful of cilantro, and a squeeze of honey.
Lunch – a salad with chicken and falafel
Mid Afternoon – eat a whole apple
Dinner – some healthy homemade chicken soup or chicken stir fry
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Found out she had hemochromatosis because: My grandpa died from it and my dad was diagnosed (after years of searching for answers to his pains).
Phlebotomy treatments: I had phlebotomies every week for 48 weeks. I then took a 6 week break because I was just so weak and ill. I had another 6 treatments. I now have a phlebotomy about once every 6 months.
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Started feeling symptoms at age 51.
Most affected by: shortness of breath
Treatment plan: no alcohol, no supplements, vegetarian diet, walking, yoga, meditation, no caffeine (to improve poor sleep patterns)
“I am finally understanding what and why I have have struggled so badly with my health since menopause and cessation of periods.”
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Diagnosed at age 59.
Started feeling symptoms at age 45.
Found out via 23 & Me.
“I can’t wait to be able to play with my grandchildren!”
Learn more about Rosie’s journey with hemochromatosis in the full post.
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Most affected by: over-sleep and low libido
Advice to others: “Read your food labels.”
Fun fact: “I am staying in a hunting farm in Namibia.”
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Diagnosed at age 19.
“Always had period problems, but it stopped in August of my freshman year of college. It didn’t return for almost a year later. A couple months before that, my hair started to fall out and get really thin. Doctors misdiagnosed me with endometriosis, PCOS, and iron-deficiency anemia until my blood work came back abnormal.”
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“I experienced pain in joints for years, but I always thought my days as a runner was the reason. My heart fluttering started 3 months before my diagnosis.
I continue to experience joint pain and I am scheduled for an MRI of my liver and heart so I feel very nervous about those results.”
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