INTERVIEW WITH SPACEY

“When the covid-19 lockdown first started in March, one of the early suggestions going around in nutritional circles was to up your intake of vitamin C and Zinc especially the liposomal vitamin C, highly absorbable. So I did that starting in the beginning of April…by the mid to end of April I had become increasingly jaundiced and exhausted all the time and I could not keep food down, so my doctor ran tests and found it.

I was Triple National gold medalist in competitive swimming and I’m looking forward to feeling like being much more active very soon.”

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INTERVIEW WITH ANG

“I have a prior rare blood platelet disorder that had required life sustaining transfusions that combined with other treatments activated the HFE gene mutations. I have no issues yet but iron must be reduced. I was tested as my brother was diagnosed last year. Unfortunately due to the stabilized rare platelet disorder, I am not a candidate for standard phlebotomy treatment and had an adverse reaction to Deferasirox an oral chelator, and now will require subcutaneous Deferoxamine chelation.”

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INTERVIEW WITH IRON LADY

Diagnosed with hereditary hemochromatosis around 12 or 13 years old.

“I still get very tired, and I experience a lot of anxiety and heart flutters. My biggest symptom now is hair loss.

I am a 20 year old Auckland girl who loves working, exercising and having a good laugh!”

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INTERVIEW WITH PAIN REMINDS ME I’M ALIVE

Daily regimen:

4am – drink 32 oz. of water to give liver a cleanse
7am – drink 32 oz. celery juice
10am – fresh fruit smoothie w/ blueberries, mango, banana, a handful of cilantro, and a squeeze of honey.
Lunch – a salad with chicken and falafel
Mid Afternoon – eat a whole apple
Dinner – some healthy homemade chicken soup or chicken stir fry

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INTERVIEW WITH RUSTY JOINTS JANE

Found out she had hemochromatosis because: My grandpa died from it and my dad was diagnosed (after years of searching for answers to his pains).

Phlebotomy treatments: I had phlebotomies every week for 48 weeks. I then took a 6 week break because I was just so weak and ill. I had another 6 treatments. I now have a phlebotomy about once every 6 months.

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INTERVIEW WITH KNOWLEDGE IS POWER

Started feeling symptoms at age 51.

Most affected by: shortness of breath

Treatment plan: no alcohol, no supplements, vegetarian diet, walking, yoga, meditation, no caffeine (to improve poor sleep patterns)

“I am finally understanding what and why I have have struggled so badly with my health since menopause and cessation of periods.”

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INTERVIEW WITH ROSIE

Diagnosed at age 59.

Started feeling symptoms at age 45.

Found out via 23 & Me.

“I can’t wait to be able to play with my grandchildren!”

Learn more about Rosie’s journey with hemochromatosis in the full post.

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INTERVIEW WITH FERRITIN FAIRY

Most affected by: over-sleep and low libido

Advice to others: “Read your food labels.”

Fun fact: “I am staying in a hunting farm in Namibia.”

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